Victoria Rian Eccleston

Saturday, December 8, 2012

Getting On With Life...

We were home from Seattle with all of the information concerning Tori's diagnosis. What now?  Well, nothing really. We just continued to do what we had been doing for months. Not giving up on our baby girl.
We began to celebrate every milestone or improvement that Tori made. With all of the therapy she attends and how hard she is pushed every day, there has been a lot of celebrating! (And a lot of cake).
Things that other parents might take for granted or not think to be a big deal are huge for us. These are things like hitting a button on a toy, rolling a ball, reacting when she sees Elmo on a video, splashing in her bath water, laughing when mommy or daddy do something silly, and bringing a spoon to her mouth.
The best advice I have gotten to this day came from a mom I met in an online support group whose child also had Lissencephaly. She told me to push Tori as much as we can, and then push some more. Only Tori will tell us what she can and can't do, not any doctor.  So although some nights it just really sucks to have to feed Tori her dinner at daycare, take her right to therapy, and bring her home at night  when we are all completely exhausted, it's what we have to do, and will keep doing.
One thing I can say for sure is Tori is the hardest working little girl ever. She never gives up and if she can't do something, she will figure out another way get the same result.
I also have to add that we are so lucky to have such amazing therapists and daycare teachers that put so much into working with her every day.
-Some pictures of Tori and her celebration cakes-




1 comment:

  1. I have read every single one of your posts...they are breathtaking.

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