I just wanted to put a quick update in here for March, even though we are only halfway through the month. Last week, after discussing Tori's development with her regular therapists, the general census was pretty much the same...Tori seems to be regressing with certain skills.
The biggest area is probably speech. Although her receptive language skills are still improving, Tori has not attempted to say very many true words in weeks. She also does not babble using consonant sounds nearly as much as she used to.
Gross motor wise, Tori is starting to drag her feet when walking or using her walker, and her left foot is turning in. This is something that she had been doing months ago, and seemed to have overcome.
One other thing that was noted during a therapy session was her preference to stay fisted. She was trying to turn pages of a book and could not because her hand was closed in a fist. This is also something that we have not seen her do in a long time.
Although her therapists all seemed to agree that this could be happening because of changes Tori is experiencing at home, I was not going to take any chances, so we have an EEG scheduled for this week to see if there is seizure activity that we are not seeing.
Hopefully this week we will get some answers and can get Tori back on track very soon!!!!
Victoria Rian Eccleston
Monday, March 18, 2013
February-Still Going Strong...
February was a month full of doctors appointments, with not always the best news, but Tori's continued improvement developmentally made it a good month anyway.
Tori started the month off with another EEG. Although I had been secretly hoping her brain suddenly cured itself, that wasn't the case. There was however, no new seizure activity so her medications remain the same.
Our next appointment was with GI. At this appointment the concern was raised that Tori has been losing weight, even though she eats like her mommy:-) We have since been giving her high calorie supplements daily and will follow up next month.
The last doctors appointment of the month has the most effect. Tori was prescribed glasses due to being too far sighted. He left eye was turning inwards more and more frequently as she strained to see. (This has nothing to do with her Lissencephaly diagnosis and is just something she has). Since getting them, Tori has done AMAZING with them!!! She keeps them on all day with no problems...and she looks pretty cute too!
-Tori sporting her spectacles-
Developmentally, Tori is still going strong! This month she has continued to improve in all areas.
Her receptive language skills are developing every day. This month Tori started pulling the blanket up to play "Peek-a-Boo" on her own!! She has also been "hiding" things from mommy on purpose. She loves to put her stacking cups down at her sides in her high chair and wait for me to look for them. She is definitely getting the concept that her toys still exist even if she cannot see them, and often looks under the couch to see what she can find. Even though she still is not saying true words consistently, she can definitely understand them and is starting to follow orders much better. If you tell her to get a book, find her car, or pick up the spoon she will do it!
Tori's biggest accomplishment this month is how much her standing/walking has improved since getting her orthotics. During many PT sessions she has shown us that she can stand for up to 30 seconds, and take 2 steps independently before losing her balance.
Our proudest moment of the month came when Tori used her walker for the first time. This happened during a PT session while she was at daycare. She finally had the freedom to walk the halls on her own without anyone holding onto her!!
The smile on her face the entire time was priceless. I am so lucky I was able to attend and get it all on video!!
-Tori walking with her walker for the first time-
-Tori being silly-
Tori started the month off with another EEG. Although I had been secretly hoping her brain suddenly cured itself, that wasn't the case. There was however, no new seizure activity so her medications remain the same.
Our next appointment was with GI. At this appointment the concern was raised that Tori has been losing weight, even though she eats like her mommy:-) We have since been giving her high calorie supplements daily and will follow up next month.
The last doctors appointment of the month has the most effect. Tori was prescribed glasses due to being too far sighted. He left eye was turning inwards more and more frequently as she strained to see. (This has nothing to do with her Lissencephaly diagnosis and is just something she has). Since getting them, Tori has done AMAZING with them!!! She keeps them on all day with no problems...and she looks pretty cute too!
-Tori sporting her spectacles-
Developmentally, Tori is still going strong! This month she has continued to improve in all areas.
Her receptive language skills are developing every day. This month Tori started pulling the blanket up to play "Peek-a-Boo" on her own!! She has also been "hiding" things from mommy on purpose. She loves to put her stacking cups down at her sides in her high chair and wait for me to look for them. She is definitely getting the concept that her toys still exist even if she cannot see them, and often looks under the couch to see what she can find. Even though she still is not saying true words consistently, she can definitely understand them and is starting to follow orders much better. If you tell her to get a book, find her car, or pick up the spoon she will do it!
Tori's biggest accomplishment this month is how much her standing/walking has improved since getting her orthotics. During many PT sessions she has shown us that she can stand for up to 30 seconds, and take 2 steps independently before losing her balance.
Our proudest moment of the month came when Tori used her walker for the first time. This happened during a PT session while she was at daycare. She finally had the freedom to walk the halls on her own without anyone holding onto her!!
The smile on her face the entire time was priceless. I am so lucky I was able to attend and get it all on video!!
-Tori walking with her walker for the first time-
-Tori being silly-
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